Tuesday, August 28, 2012

Maryland Renaissance Festival 2012


On August 25th we went to the Maryland Renaissance Fair with my Mom and Sister. It happened to be opening weekend, but it was the only time we would be able to go before the kids start school. We have been able to go to the Renn Fair every year since Mason was about a year and a half, except last year. We missed last year and it was a total bummer, so Mason was excited to find out we would be going again. Sophie doesn't remember going since she was only a year old the last time we went, but she took her cues from Mason and was jumping up and down the night before. I too, was excited about going back. It's such a family friendly, fun place and I really enjoy dressing up. Only, this year I was also real nervous about going. Having a food allergy to manage makes outings like this a real stressor. You have to plan, plan, plan and then hope for the best.

In the weeks leading up to opening day, I contacted the MDRF staff asking about their food vendors and ingredients, letting them know our situation. They recommended that I bring our own food as they could not 100% guarantee the safety of their foods for those with severe food allergies. That made sense and I was glad to know they allowed outside food in their venue (most places don't and you are just screwed). So I planned accordingly, packing lunch and snacks for both the kids. Mason made it easy when he asked to have his lunched packed too. He really looks after his sister these days, never wanting her to be left out or feel different than the rest of us, and I love that.

I ended up taking the backpack diaper bag; it comes in handy at festivals, parades, and other events, because you can pack a lot of stuff and carry it easily. I made sure to pack a change of clothes; the portable potty seat, as they only have porta potties and no way am I letting my kids butts touch those nasty seats; Benadryl and Epipens; baby wipes for hands and lysol wipes for tables and seats. People may think I am totally paranoid when they see me wiping down chairs, tables, and benches, but when your child runs the risk of having a reaction after touching any surface with traces of peanut and other nut residue, you would be doing the same.

The weather ended up being really nice. After the scorching Summer, it wasn't too hot and only raining towards the end of the day, but not too hard; especially not hard enough to spoil the kids fun. Sometimes I miss the simplicity of childhood and not having to worrying about adult issues. We arrived around 10am and didn't leave until around 4pm; having had a fun filled day. Here are a few of the highlights throughout our day.
The Rouges celtic band. They are awesome and so much fun to hear play.

After The Rouges the kids were hungry, seeing it was 11:30pm and their usual lunchtime. We packed lunchables for the kids and made sure we bought food that was the least likely to be made, or have come into contact with nuts, for ourselves. Pizza seemed the least likely to be contaminated and of course I made sure we all wiped our hands with baby wipes afterward.

After lunch we headed to the clothing stores to take a peak. We have never been able to get Mason to dress up, despite that fact that Grandma, Aunt Jenni, Fred, and I ALL dress up. I thought especially with Fred dressing up that he would concede, but so far, no such luck. Sophie is a different story. She immediately picked out a dress or two that she liked and we tried them on. After finding one in her size and a color she liked, she wouldn't take it off. Then we bought a matching head piece and Sophie was running around the rest of the day saying she was a Princess. I knew we would be able to get my little girl to dress up.
This is Sophie in her garb just after Grandma bought her and Mason a sword and shield set. She, of course, got a bejeweled purple sword and a shield with a Purple Unicorn painted on the front. Mason picked out a black sword and a shield with a phoenix painted on front.
These photos crack me up. How fierce Sophie looks here.
Fred and I in our garb.
Waiting for jousting to start, we took the kids through the maze. Fred and I both thought this was going to be an easy walk through, but still fun for the kids. We quickly learned that it was not going to be that easy to find our way through. Each turn around a corner was met with excitement that this would be the way out followed by laughter when it wasn't. After a while Fred and I began to get really nervous we would never find our way out. Mason suggested that Grandma start yelling so we could follow her voice. Eventually we found the exit; all smiles and laughter, happy to finally be out. It really was fun, especially watching the kids run ahead of us, laughing and smiling, hoping to be the one to find the way out.
Sophie and I then rode an elephant. Being opening day, I totally expected there to be a really long line, but we got to ride immediately as there was no line at all. Woohoo! Sophie loved it and I was glad that she would actually remember it this time.
Mason was really into the jousting.
During the joust was the only time I seriously got nervous and paranoid about Sophia's food allergy. I was sure to steer clear of the Roasted nuts stand, as there seemed to be only one. However, at the event, there were vendors walking around with packages of roasted almonds, cashews, and the such. Sophia tested positive to a severe allergy to cashews along with peanuts and as the vendor made it's rounds I fixated on each of the people sitting around us, praying that none of them bought a bag. We got real lucky.

We shared a treat of strawberry flavored Italian ice stuffed into a hollowed out orange. I remember Sophie devouring the thing, her face stained red the rest of the day.
The kids got knighted and princessed. (If that is even a word.)
Had some fun in the many picture cuts outs.
The adults enjoyed the local brew.

It was then that it started to rain, and I mean really pour. It didn't deter Mason from playing in the pirate themed play area. He loved it, running in the rain. Sophie sat in the stroller, snacking, while we took shelter under the trees and archway.
After the rain stopped we took the kids for pony rides. Mason was old enough to ride on his own this year and absolutely loved that. Because of the rain, there was a small line and the kids got to ride (for free) three times. This was Sophie's favorite part.
Before leaving we got to see Squire on the Wire. This guy was walking this tightrope directly over the crowd, in the rain. It was amazing.

We had a great time and look forward to next year!
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Saturday, August 18, 2012

Stylish, Homemade Drawstring Bags

Back in July, I found this post in my google reader and they looked so cute, I decided to make the kids their own bags to carry with us to our various Summer outings. However, they looked a bit beyond my skill level so I searched for some simpler designs. I settled upon three and they can be found here, here, and here. The first I used only for reference of the patchwork, the second one I liked how she sewed the holes for the drawstring much better, and the third I liked her step by step pictures. I am such a visual learner. Each tutorial is easy to follow and the bags came together quickly and quite nicely. I tried to document my process to give you all a tutorial of my own, but alas, due to my lack of sewing skills (and unable to read directions when I am tired) it was 2am when I finally finished Sophia's bag and the photos came out terrible. There is little to no light in my craft room, or the dungeon as I refer to it sometimes, as my craft room is in the basement with one tiny window in the top corner, and the track lighting we installed is just not getting the job done. So I apologize, but if you follow the tutorials from the links above you should do just fine.

Once I had my plan written down, Mason went with me to JoAnn's (I had a coupon) to pick out fabric. He was insistent on the flame fabric as soon as he saw it. Such a boy he is, I swear. Finding fabric for Sophie was a bitter harder. I know she likes pink, but wasn't sure what she would like beyond that. I finally decided upon a set of flowery fat quarters in pinks, blues and greens. I also purchased cheap white linen for the liner. I then went to AC Moore and bought parachute cord to use as the drawstring. Though, nylon cord from Home Depot would work just a good.

I used a 3/8" seam allowance and calculated that into my measurements, so I ended up with my final bag measuring 13"x11". Perfect for small children.

Supplies for Mason:
1/2 yard of flame fabric cut into 2 - 15"x12" pieces
Liner fabric cut into 2 - 15"x12" pieces
16ft. of black parachute cord cut into 2 - 21" lengths (about)
Grosgrain ribbon cut into 2 - 2" pieces

Supplies for Sophie:
4 fat quarter pieces cut into 4.875"x3.875" strips
Liner fabric cut into 2 - 15"x12" pieces
16ft. of white parachute cord cut into 2 - 21" lengths
Grosgrain ribbon cut into 2 - 2" pieces

(Aren't they such cute models?)

The kids are super proud of their bags and couldn't wait to start using them. I couldn't have gotten them done at a more perfect time as they came in very useful for our second trip to the Free Summer Movie Fest. It was the day after Sophie's trip to the ER and I was uber paranoid about her eating anything that I couldn't read the label. Yes, this included popcorn and all candy sold at the theatre. My plan was to use them to bring our own food. I packed two juice boxes, some fruit snacks, goldfish, and gummy bears in each of their bags. (I ended up caving and buying some popcorn once we sat down and it was fine). We have since used these when going to see other events like Reptiles Alive at the mall (packing snacks like grapes, raisins and goldfish), going to the allergist (I packed it with some books and toys), and one more trip to the movie theatre (this time I made our own popcorn). The kids insist on bringing these with us just about anywhere we go now. I'm glad they are getting good use, and holding up to the wear and tear. I had also intended to use these for going to the pool. Kids could pack snacks, goggles, toys, a change of clothes, etc. in their bags and it would be less for me to carry. But we haven't made it to the pool much this summer. I just had an idea; if I lined the fabric with vinyl it would be perfect for the beach. Note this on my list for future projects.

I had planned to post this back in July, shortly after I finished making them, but recent events pushed this to the back burner. I have found it hard getting back to normal, and writing about projects or crafts have just felt so trivial. I know blog posts have been sporadic at best and sometimes just random, but it has been an incredibly rough and emotional few weeks. Most days I can't even find the words to write, or it all comes out sounding so disjointed (a bit like this post is sounding right now). I am slowly getting back into the swing of things and will hopefully be blogging regularly again soon. In the meantime, what do you think of the changes to my design? I even created, and added two new blog buttons, so if you haven't already, grab one for your website or blog.

As always, thanks for reading.
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Sunday, August 12, 2012

Simple Things Sunday: Budding Gymnasts

In lieu of Grandma Sunday, as my mom went out of town today, my sister came over to play Wizard 101 with Mason, and help give him some pointers. If you are not familiar with this online role-playing game, it is a little bit like WOW (World of Warcraft) but for the younger crowd, holding a rating of Everyone 10+. Mason has been downstairs in the basement, on the desktop in Fred's workshop playing this game almost every day this past week. He is super proud of the fact that he can do it completely on his own, and I have been thrilled that he has found something to hold his interest away from me for a period of time throughout the day. Summers are a struggle around here. Boredom being the major culprit. While they are busy playing Wizard 101 and Sophie attempts to diaper her babies, I wanted to share a moment, from the other day, with you.

This weekend the kids and I watched the rhythmic gymnastics final. A bit disappointed we missed the synchronized swimming, I was eager for Sophie to see this sport as she loves to dance. It proved to be a good choice as she stood in the middle of the room showing her own rhythmic moves. "I can do that," she would say, followed by a spinning move. Mason would make the beep sound indicating the start of their performance. At one point there was a minor fight over whose turn it was to perform, because clearly the big space in the family room was just not enough room for them both. Mason tried to do a split jump and land with his feet in straddle, but mentioned he couldn't do it. As Sophie tried the move herself she replied, "see Mason. Easy peasy." Ha, ha, she cracks me up; her personality really beginning to shine.
They were being so cute and funny, I couldn't help grab my camera and capture the moment. I'm glad I did, because it is a good reminder that life can still be normal amidst the turmoil and hardship that have recently befallen us. My children are constantly showing me that no matter how difficult life can be, allowing yourself to smile, laugh, and just revel in the simple things can hold the most amazing healing power.
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Thursday, August 9, 2012

Scratch Test

Last thursday, August 2nd, was our appointment with the allergist. I am not entirely sure what I was expecting, but I was really not prepared for what transpired. *Disclaimer: I want to point out that this was our experience, and that each individual experience is unique to your/their personality, medical history, and circumstances. Always consult, and take the advice of your pediatrician. If you are new to food allergies, as I am, and are about to go through the necessary step of testing, I hope that by reading this, knowing the details of what someone else has gone through, you will be better prepared for your first visit; because I wish I had been able to read about what to expect, in detail, before taking our daughter. That said, below is a detailed account of our appointment with the allergist.

The appointment started off just like any other, getting her usual measurements and vital signs. Sophie was in good spirits, in fact we were all smiling and laughing. Once the allergist came in, we talked a brief medical history and gave the story of how we came to be here that day. He gave her a quick check (looking at her ears, eyes, and throat) before explaining his thoughts and what he would be testing her for today; the usual culprits in food like tree nuts, shellfish, peanuts, egg, wheat, soy, etc. and inhalants such as: cats and dogs. He had a suspicion that she is allergic to eggs and that is what has been causing her horrible eczema. Fred and I just stared at each other, eyes wide, each hoping beyond hope that he was wrong. A peanut allergy we could handle, that is fairly easy to avoid, but an allergy to egg; this would be more difficult.

As we waited for the nurse to arrive and do the testing, Mason played on his LeapPad while Sophie listened to me read the ballet Strawberry Shortcake book. When it came time, the nurse explained the importance of keeping her still during this entire process. They do not use needles, but rather sharp plastic sticks to prick the skin. Sophie was laughing as the nurse drew circles on her back, indicating the different panels. She must have had close to 30 dots on her back, and as the nurse began to prick Sophie's skin, my heart went out to my little girl. She managed to get out an audible, "Ow", before all out screaming and trying to get out of Fred's grasp as he struggled to keep her still. I tried singing to her, anything to distract her, as the test went on, prick after prick. It didn't take as long as you would think, but when your daughter is screaming so bad that her brother is almost in tears and trying his best to tune her out, it feels like eternity. She was crying and saying she was scared and I did my best to choke back the few tears that began to well up. I will not cry today, I told myself. It was finally over and for the next 15 minutes we had the challenge of keeping her from scratching or messing up the marks on her back; which doesn't seem like such a difficult feat, but a screaming 39lb. three year old, whose back is now itching with all the fervor of an annoying mosquito bite, is a lot stronger than you think. I was glad Fred came to this appointment, as I would not have been able to keep her under control. I had to assist a few times when she got loose and stood up on his legs. He held tight to her arms as I sat her back down, holding her legs, careful not to touch her back. She kept yelling, "let go of me! Let go of my arms!" I felt bad for holding her prisoner in this state, but I knew this test was needed, as it was an important piece to the puzzle. Whatever we found out today would get us one step closer to being able to effectively manage her food allergy, ultimately keeping her healthy and alive.

We still had 13 minutes to go. Those 15 minutes felt like an eternity, as we struggled to calm her down. I tried playing her favorite My Little Pony episode on my iPhone; she was not interested. She wanted out of daddy's grasp and to scratch her back. Totally understandable. Mason was begging us to get her to stop screaming. We were trying as best we could. In assisting to hold her still, I was face to face with her back, and had the perfect view as the reactions developed. There was a significant welt appearing, and I prayed it wasn't egg. As hard as we were trying, it wasn't until Mason, who I'm sure was at his own wits end, came over with his LeapPad, to show Sophie his game, that she finally began to calm down. Proof, yet again, that they share a special bond. It was then that the nurse and doctor came back in, went over the results, and measured the welts that appeared. The test showed positive for peanut (that was the huge welt) and cashews. So we were advised strict avoidance of peanuts and ALL tree nuts. Other positive reactions showed up for cats and dogs. Not surprising, as Fred is allergic to both and Mason is allergic to dogs. At least these are not life threatening and can be managed with a dose of Benadryl before going to a house with pets. The doctor said there was a very minor reaction to egg, I didn't see it, and even though he did not diagnosis it as an allergy he is having us put her on an exclusion diet for the next 4-6 weeks. The goal is to find out if the egg is indeed causing her eczema. So if her eczema improves after eliminating it from her diet, than we keep the egg removed. If there is no change, than she can eat egg again. This means we need to avoid all foods that have egg, and let me tell you just about everything we eat has egg in it. As much as I hate to see her in pain with the eczema, I am hoping for no change. Does that make me a horrible mom? At least there is some relief in knowing that if she is allergic to egg it is not life threatening. So I won't have to freak out so much if she comes into contact with this food. The worst reaction will be an eczema break out; been there done that for the last 3 years.

I had a list of questions for the allergist that, of course, I didn't get a chance to go over; only one or two got answered. But, at least we now have a better idea of what she is allergic to and have gone about adjusting our lives to account for them. These last few days have been spent running around; getting school medical forms filled out, signed, and turned in on time; and making our home (snacks and meals) Sophie friendly. I have been posting cheat sheets all over the house and in my purse to help me with the process, and doing my best to educate family and friends. I am trying desperately to get as organized as possible before the school year begins in three weeks and find that I am feeling frantically unprepared. I thought I had it all in the bag until this food allergy through me for a loop. Now I am not so sure I am prepared for it all.
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Wednesday, August 1, 2012

True American Idols



I can remember sitting down as a child with my family and watching the Olympics. We would pop some popcorn and gather around the television to cheer on the USA; gymnastics and figure skating being my all time favorite events to watch during the Summer and Winter games, respectfully. These times were just like watching Redskins Football: our reaction to winning gold was equal to that of winning the Superbowl; screams, jumping up and down, hometown pride, and maybe even a tear or two. Standing on that podium, holding your Olympic medal up for the world to see, must be the best feeling in the world. Who wouldn't want to be an Olympic athlete? They had their faces on Wheaties boxes and epitomized greatness.

I recall being a young child in the 80's, wearing my official Mary Lou Retton leotard, accessorized with sweat bands for my wrists and head, and equipped with pink dumb bells and the rhythm and ribbon set from Get in Shape Girl. Do you remember Get in Shape Girl? I'd put in the cassette tape and shadow box my heart out, or dance around the room with my ribbon pretending I was an Olympic champion. In the 90's, my sister and I would spend our Summers rollerskating in the garage, imitating the likes of Kristi Yamaguchi, pretending to do triple axels and spirals. Fast forward to my 30's and I still get excited over the Olympics. Watching the 2008 Summer games in Beijing, witnessing history as Michael Phelps won his 8th gold medal (a record for the most first place finishes in any single Olympic games) was beyond exciting. We all screamed with pride in our fellow countryman, unable to believe he actually pulled off this incredible feat. So, it was with great anticipation that I awaited for the Olympic Summer games to start this month.

In the weeks leading up to the opening ceremony there were stories being shown detailing the favored U.S. Olympians journey to London. You couldn't help but be inspired. I looked at my kids and thought, these are your true role models. Proof that you should never give up, always give your best, and even if you fail you still achieved something great; and that is enough to make those who love you so very proud. These athletes, some very young men and women, get to represent their country in the most prestigious event in the world. This is no easy accomplishment, and for them to handle that pressure with maturity and grace is what makes them Olympians.

During the opening ceremony, I thought it very poignant for Great Britain to not choose a former Olympian to light the cauldron, but to pass that privilege onto the younger generation; 7 aspiring young athletes who may become future Olympians. Fred and I have made it a point to have the kids watch as much of the events as possible. I want them to see the battles, the triumphs, and the defeats. I want them to see the skill, the dedication, and the courage it takes these athletes to compete. I want them see greatness, and as a result to see themselves.

I thought all this was falling on deaf ears, until the last few days. Mason has been asking to watch the beach volleyball events and in turn, came up with his own version of the sport, using our beach ball, and begs to play it every day. This morning, I woke up and started preparing the kids to leave for our planned trip to Fairfax Corner to see Reptiles Alive. Mason has been excited about going ever since we saw their Rainforest show a few weeks ago. Any time he can see snakes, and lizards, and such is an exciting time. So, when I asked if he was ready to go and he said no, I was shocked. The archery event was on (remember this post?) and Mason wanted to stay and watch it. As I sat there with him, cheering on Khatuna Lorig, my heart smiled. It was a great moment shared between me and my son. Afterward, I showed him and Sophie the women's gymnastics team final I taped the night before. It is always on when they are in bed so I thought they would like to see it, especially since we won gold! Sophie was jumping around the room, imitating their routines. At one point I looked up to see her standing absolutely still, staring at the screen intently before uttering, "wow, she's good." Mason was really impressed too, and after it was over, asked if I could watch him do his gymnastics moves, "but they are the woman's because its the only one I've seen," he explains. I sat there watching him jump from couch to couch, doing his gymnastics, a big smile on his face as he looked at me and said, "I'm doing really good." It reminded me so much of my childhood. He told me that Sophie wanted to be a gymnast. I told him he could too, or he could be an archer, or a swimmer, "or play beach volleyball!" he exclaimed. Yes! I could see that spark of inspiration, the hope, the dream coming alive.

I hope that I am able to encourage and nourish those dreams and to always give my kids the support and belief that they can be whoever they want to be, and do whatever they want to do. I am a parent and I just want my kids to be great: to have the courage, determination, perseverance, and belief in themselves; to always try their best and never give up. In other words: to have the values of an Olympic athlete. I don't care if my kids are olympic gold medalists, or if their dream is simply baking cupcakes. I only want them to believe in themselves; to know that they have greatness and the heart of an Olympian no matter what they do.

So I find it only fitting the motto of these 2012 Olympic Games in London is, Inspire a Generation. Thank you Olympics, for doing just that!
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Tuesday, July 24, 2012

A Mother's broken promise

July 18th, 2012

"Emelina scraped toast corners into a blue enamel pail and ran a sinkful of water. 'I don't think I could stand to let Mason go off to Kindergarten next year if it wasn't for the baby. It kills you to see them grow up. But I guess it would kill you quicker if they didn't.'"
--excerpt from Animal Dreams by Barbara Kingsolver

From the moment I became pregnant, I made a promise to protect each of my children with every fiber of my being until the day I die. Feeling another human being growing inside of me; I can't explain how that feels, but it changes you. There is a special bond that connects us to our children, a love unlike any other. As a stay at home mom I have devoted my everyday to making sure my children get the best possible life. This includes: feeding them the right foods so they grow, teaching them the right things so they learn, playing with them so they have fun, and always, always keeping them as safe as I possibly can. Just as I promised them I would.

So when you fail to keep that promise you made to your children, it is the worst day of your life. You realize you are vulnerable, you are not Super Woman, and you don't have it all together. You do the best you can, but you will not be able to protect them from everything. It's a hard pill to swallow. Today I had to swallow that pill. After all the stuff we've had to deal with over the last few years you'd think we were done and get some reprieve. We would not be so lucky.

Today started off, just like any other. The kids watching t.v, me hoping to get a few more moments of much needed sleep, willing myself to not get another migraine. Late in the morning I paid some bills, took a shower, and made plans to take my car in for emissions testing after we ate lunch. As always, I asked the kids their preference. Mason asked for a peanut butter and jelly sandwich. It had been a while and I happily agreed it was a good idea. A simple and easy lunch as I was determined to get the day started. Realizing Sophie was now three, and could be given peanut butter, I made her one as well. At first she looked at it in the jar and was like, "ew, that's gross. I don't like that." But after cutting it into small star shapes she took her first bite and happily announced, "it's delicious! I like it!" And before I knew it she had devoured the rest, just like that.

A few minutes later she had to go potty and I rushed with her into the bathroom. As she sat there she started coughing and acting funny. "I choke Mommy," she told me. That usually means she's going to throw up. Then she started scratching at her neck and face and rubbing her eyes. I noticed the slight hint of a rash and my concern began to grow. Crap! Could she be allergic? Oh God, I hope not.

Me: "Are you feeling OK, Sweetie?"
Sophie: "I sick. I need to go to doctor."
Me: "You're sick? Like your stomach?" She had eaten three boxes of raisins earlier and I was thinking the horrible poop was on its way.
Sophie: "My heart."
Me: "Your heart?"
Sophie: "My heart," she repeats as she touches her chest.
Me: "Your heart, is it beating fast?"
Sophie: "Yes!" She is clearly upset now.

I try to check her heart, to find out if it is really beating fast; but I can't tell. She is looking kind of pale. I take her off the potty and run to get the phone. I call our pediatricians office, and after a few excruciating moments I talk with a nurse. Sophie is starting to act sleepy at this point and still itching--all over. It is determined that I should skip coming to see them and go straight to the ER, just to be safe. I'm not completely concerned at this point as she is breathing fine, no massive rash showing up all over her body, and no throwing up; she is just irritated and tired. Always erring on the side of caution, I do as I was instructed. I run downstairs to tell Fred what is happening, leave Mason at home with him and make the 10 minute trip up the road to the hospital; thankful we live so close.

Sophie looks like she might be trying to fall asleep. I urge her to stay awake. Despite this, she walks into the ER on her own accord; holding my hand, her baby bear and blankey in tow. And just like all the other times, she seemed to be pretty much fine by the time we enter the lobby. She was asking about stickers and toys as we made our way to the sign-in window. I had just finished filling out the form when I heard Sophie call my name and proceed to puke ALL OVER THE HALLWAY. Nothing was safe; her blankey, baby bear, my purse, our shoes, clothes, and anyone within our vicinity was covered in purple and brown vomit. I stood there trying to calm my daughter down, unsure of anything else to do, while she acted out a scene from the Exorcist. I see a puke pan on the counter and grabbed it just before a nurse came out with a bucket, ushering us out of the waiting room and into the Pediatric Emergency Department. I carried Sophia as fast as I could, listening to her attempts to grasp for air in between moments of vomiting. The next two hours will be the most chaotic, stressful, and horrifying moments of my life.

Immediately, there were 4 people in the room all doing something. Orders were being yelled, Sophie was crying, and then screaming, and then puking some more. The doctor ordered a shot of epinephrine, Benadryl, and a steroid. She confirmed Sophie's throat was closing and pointed out the now massive rash that covered her chin and throat. I felt the tears well up. I was doing my best to stay calm as things were being done but not exactly explained. I knew they were all there to help. The nurses struggled to get in the IV. Sophia was scared and her body, fighting off the allergy, were all causing her veins to constrict. They tried twice in one hand and then twice in the other before finally getting it in. Sophie's screams were more than my emotionally fragile state could handle. It was a sound a mother should never have to hear. Having to endure the fear and pain my daughter was experiencing, the room suddenly became like a sauna and I felt faint. I should have eaten lunch. I knew my vaso vagel was kicking in. It was the stress, the worry, and a lack of blood sugar in my body. In the midst of all this chaos, a nurse found the time to grab me a sandwich, juice, and a chair. I sat there holding Sophie's hand, unable to hold back my tears; the guilt overwhelming. I was the one who agreed to the peanut butter. I was the one who decided it was OK for Sophie to have. I was the one who fed it to her. How could I not feel guilty? I gave my child, my sweet, innocent little girl, food that ended up being almost fatal.

I've had many trips to the ER with both my children, and have always managed to remain calm and never cried. It must have been the knowledge that my daughter was experiencing full-blown anaphylaxis, or perhaps it was the knowledge of my best friend, who having gone into anaphylactic shock after eating a piece of candy, died from her peanut allergy in this very hospital almost 13 years ago to the date. She was only 20 years old. Possibly it was both, along with my guilt, that shook me to my core. The tears flowed and I tried to fight them back. I tried so hard to not show Sophie I was scared; to be that rock, that calm I know she so desperately needed in that moment. Holding her precious little hand in mine, all I could say through my sobs was, "I am so sorry, sweetie. I am so sorry." I kept repeating it, in between kisses, hoping she might turn to me and tell me it was OK; that she wasn't mad at me and that I was still a good Mom. She never did. She just kept screaming. It went on for at least and hour and a half. By the time she had finally calmed down, showing signs of the medicine kicking in and her health improving, it was mid afternoon and we were both exhausted.

As she slept on me, my thoughts drifted back to my friend. I wondered if this was what she went through in the moments before she left this world. How scared she must have been, the pain she must have felt. The tears welled up again and I quickly brushed them away; willing myself to think of anything else. Sophia slept on me for about 45 minutes, until Fred and Mason arrived. By 3:30pm she was feeling better. The doctor came by for a quick check. Sophie's vitals were normal, no more air restriction and the rash was gone; however, she needed to stay one more hour for observation to make sure her reaction didn't flare up again. By 4:30pm we were all restless and ready to go home. At this point, Sophie was playing with Mason and even laughing. It was like she was a whole new child. She had her spunk, her attitude, and her smile back. I even allowed myself to smile. Four hours after we arrived, she was finally discharged and we could all go home.

Within 24 hours of the whole ordeal, I sat down and wrote story you just ready above; my emotions still raw, but I knew I needed to get it out. In the days that followed I did the best I could to show a brave face while inside I was falling apart. When I could no longer keep it together, I hid in the pantry and sobbed. Terrified, overwhelmed, and feeling all alone I struggled with thoughts of where to start. When it came down to it I really knew nothing about food allergies. Then I remembered that I really wasn't alone, and reached out to those I knew with kids who suffered from food allergies. I have spent the last week immersing myself in websites, blogs and online support groups learning as much as I can about peanut allergies. I want to be as informed as possible, so I could then educate my daughter, our family, and our friends. This is our first and foremost line of defense. We cannot effectively protect her if we do not know how. As it turns out, I was right; I knew nothing.

This is a major lifestyle change for us and I would be lying if I said it was going to be easy. I now carry an Epi Pen with me wherever we go, another one stays at our house, while yet two more are slated for my parents home, and Sophie's preschool. We have been advised to avoid not only peanuts, but also tree nuts until we can get her tested by an allergist. My biggest fear is not that we can no longer have peanut butter. Yes, it sucks. I love me some PB&J and Mason's favorite was PB and Fluff. However, its not like we ate them on a daily basis. Quite the contrary. PB was almost like a treat in the house, something we only ate every so often. Mac n Cheese, Chicken Nuggets, and such are more of a staple in our house. Besides, I don't like foods with nuts it them anyway. I've never been a huge fan, so that part is not a big deal. At least for me. Fred, well he likes himself some nuts (I mean he lives with us right?). Seriously though, he loves nuts. Still, we rarely have a can of nuts, or a bag of peanuts in our house. Again, a non issue. Done. No nuts. We're over it. Move on. Except that's not all of it. What terrifies me the most are all those foods out there with the hidden danger. The ones that have possibly been exposed or might have traces of peanuts in them. Foods that would never have crossed my mind as being life threatening to my child. It is astounding the number of foods we have eaten on a regular basis that have "manufactured in a facility,"or "manufactured on equipment" that also process peanuts written in the nutrition section. Something I never noticed, or rather never even attempted to look for because there wasn't a need. These are all now on the don't even think about it, no seriously just forget you even knew this food existed list. No more chocolate chip pancakes; no more M&M's with our popcorn on movie nights; no more going out for ice cream or frozen yogurt; no more Twix for me, Snickers for Fred, or any candy bar for that matter (I can Halloween is going to be a hurdle); no more running up the road to Harvest Bread Co. for their delicious homemade breads and rolls; no more cake or cupcakes from the bakery (birthday parties are going to be a bitch); no more cookies from the snack bar, or treats from the sample booth; and good lord, going to a restaurant now puts me in a panic. And when I think of how the kids get excited for haircuts just so they can get their packaged cookies from Ms. Holly it breaks my heart, because they can't have that anymore. The threat of cross-contamintion on any single food is extremely real and down right terrifying. Even those who mean well and try to make nut-free cookies, treats, or other foods for my child could potentially be putting her life at risk if they didn't properly wash their equipment, hands, utensils, and surrounding area. How can this not be a parent's worst nightmare?

Right now we are waiting for her appointment with the Allergist to arrive and crossing my fingers we have no more allergic reactions between now and then (and well never again. But I figured that was a given). In the days and weeks to come I am hoping to have the answers to my questions and at least some of my fear subsided before Sophia starts school in the fall. At least I have the small comfort of knowing her preschool is a nut-free facility and that allergy notices are posted in the classroom as well as the kitchen. Yet still, I freeze in fear at the thought of her not being under my supervision, or rather at the mercy of others, for three hours every day. As if I wasn't already the neurotic, paranoid Mom about ticks and Lyme Disease, a peanut allergy HAD to be thrown in the mix. How am I going to get through this? How am I going to not freak out and worry every second of the day that she is not in my presence? I was so excited and ready for her to go off to school, to spend that time away from me, and now I can't find the strength to let her go. Does it get easier? Will I always worry? Am I going to become that Helicopter Mom my husband warns me I am turning into? Will I die of a heart attack, or ulcer from worry before she comes close to ever having a reaction again?

I suppose the answers to those questions will come in time. For now, I am going to pour myself a glass of wine, sit down with my favorite TV show, and will myself to relax. If only for a few fleeting moments. Stay tuned for more posts about this peanut allergy as we navigate our way through this challenging diagnosis.
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Monday, July 23, 2012

Siblings

Sophia picked a set of Princess paper dolls from her earning bag this morning. As she sat there picking out outfits and accessories she turned to me and proudly announced, "Don't they look stylish?" Mason then came over to check out her work. "You always make them look stylish," he tells her with a smile.

I felt this profound sense of pride in his ability to compliment his sister without being prompted. And that is why I love these two so much. Their genuine devotion for one another makes me so proud and always puts a smile on my face. Don't get me wrong, they fight like cats and dogs just like any normal siblings; but they also hold a deep love and caring for each other. This love is shown to us when Mason falls off his bike and Sophie jumps off hers, running to his aide and making sure he is alright. When either child is sick the other is so concerned they lay by their side while they sleep. When Sophie is upset, for any number of reasons, Mason quickly rushes to give her hugs and kisses, and reassurance it will be OK. The most recent example: our trip to the ER (which will be explained in a later post). While on the phone with Fred, Mason was in the background yelling that he wanted to talk to Sophie, to make sure she was feeling better. This special relationship they share, while it can be taught, is one they were just born with. From infancy, Mason was the only one who could calm Sophie down when she was really upset. We would try all we could until finally giving in and asking, "Mason, can you sing ABC's to her?" He would happily do so each and every time, and sure enough Sophie would calm right down. We really hit the jackpot with our kids. I say this because I only recently realized that not all siblings act this way, whether they care for one another or not. For instance: We were at a party talking with friends about our kids, and we mentioned the things Mason and Sophie do for one another when they are hurt. Our friend, who has three kids, responded that his kids didn't do that. They care for each other and get along great, but they were not the ones to rush to each others side in order to make sure they were OK. Really? Not all siblings do that? It was then that I began to feel real lucky with the family we created. So now, when I come across moments like this, ones that show the true meaning of unconditional love and family, my heart bursts open and I can't help but point out its greatness.

As I turned around, catching Mason's eye, a smile spread across my lips and I said to him, "That was such a nice compliment you gave to your sister. I really love that." The smile and look of pride on his face was the best gift in the world.

Thank you for these two wonderful souls, as they were definitely meant to be siblings.
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